Making a Difference

Our Projects

Empowering hemophilia patients through treatment programs, education, livelihood support, and comprehensive care for children and families.

Medical Support

Home-Based Self Treatment Program

This project empowers hemophilia patients to manage bleeding episodes safely at home through proper training and medical guidance.

Objectives

Train patients and caregivers to administer clotting factor injections at home
Reduce emergency hospital visits
Ensure quick response during bleeding episodes
Improve patient independence and confidence

Implementation

HTC departments provide supervised training
Patients learn self-infusion techniques
Education on dosage, hygiene and safety
Regular follow-up and monitoring

Impact

Faster treatment during emergencies
Reduced complications and joint damage
Better quality of life
Lower treatment delays

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Healthcare Training

HTC Self-Infusion Training Initiative

Hemophilia Treatment Centers (HTC) play a key role in teaching patients and families how to safely manage treatment at home.

To build a self-reliant patient community capable of managing their condition effectively.

Services

Hands-on self-infusion training
Emergency bleeding management education
Counseling for patients and caregivers
Treatment adherence monitoring

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Social Support

Patient Support & Livelihood Program

Many hemophilia patients face financial hardship due to medical expenses and limited employment opportunities. This project focuses on improving their economic stability.

Initiatives

Fundraising for treatment support
Skill development and vocational training
Small business startup assistance
Financial counseling and mentorship

Impact

Improved financial independence
Reduced treatment burden
Better long-term quality of life
Empowered families and communities

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Child Care

Hemophilia in Children: Step-by-Step Care Program

This program helps parents understand how to safely manage and care for children living with hemophilia.

To ensure children with hemophilia grow up healthy, confident and active.

Guidance

Early diagnosis and regular monitoring
Safe physical activity and injury prevention
School awareness and emergency planning
Nutrition and physiotherapy guidance
Emotional and psychological support for children

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